Baby Loss Awareness Month

The above photo is of me holding my beautiful baby daughter, Matilda Rose. It was taken about half an hour after coming out of theatre where she had been delivered by emergency, crash C-section. She’d been alive just half an hour before. The fantastic team did their best, but she couldn’t be revived. It’s one of my favourite pictures, because i look like a really mummy in it. I look like someone who just had a baby, and if she’d been delivered a little earlier, I might have been one of those mummy’s with balloons and cards and a going home outfit carefully chosen. The day I walked out of hospital without her was by far the worst day of my life. It felt completely unnatural. Even the day light felt wrong. It felt like the world should have stopped right there.

It’s Baby loss awareness month. Baby Loss Awareness Week runs from 9th to 15th October, but the whole of October is given over to raising awareness of miscarriage, stillbirth, neonatal loss, baby loss in general. I have always tried to be open and honest about my own experience of stillbirth and miscarriage and the special sort of grief that comes with being infertile, a type of loss in itself. Sometimes I want to talk and talk about it all, to anyone, a sort of purging of it all. Sometimes I will be recounting our story and I find that I am punctuating it with ‘I can’t believe this happened to us’ , because I can’t, still. I am one of those tragic parents whose baby died because of mistakes in her care. I am one of those ladies whose stories I used to read in newspapers, magazines, the ones where I would feel awful for them, I’d shake my head and frown and sigh, then turn the page and read the next thing. But I can’t ever turn the page now. I am flattened out into a story of grief and death and twelve years of trying for a baby and five rounds of IVF and a stillbirth and two miscarriages and I cannot. believe. this. is. me. Sometimes I just can’t even bear to talk to anyone because it’s too hard to be surrounded by other people’s families, all moving on and being set free whilst I am this rock in this river. I don’t wish them ill, I aren’t jealous, not exactly, I just have been placed outside of everything by what has happened, and I feel it quite acutely, it feels like having an open wound and it’s sore. Sometimes I think I am done with grief and loss and have finally moved on and I don’t really feel much towards it, and then someone will make an off the cuff remark, or there will be a photograph or a ‘game’ on Facebook and it’s like being slapped. It’s like being put straight back into the dark days of grief.

As it happens today is exactly three years since we went along to Hull for a second scan, following the first one which had shown that our baby, our third pregnancy, didn’t have a heartbeat. This was our second miscarriage, and it was confirmed at this scan, I was given an appointment day to come into the unit and have the miscarriage induced as my body just did not want to let go. When I think about that miscarriage, I think it felt like the end of any hope or joy in fertility treatment, because the worst could just keep happening, and I knew that if we carried on, we’d be facing this over and over.

We’ve decided on just one more go, now, in 2016. I posted something about it on Facebook recently and had the loveliest response of support and kindness. Lots of hugs, lots of people telling me not to give up hope. I wish, I wish, I wish it was as simple as not giving up hope. I wish it was as simple as just facing a failed cycle, which is bad enough, but to be facing another miscarriage, another still birth, it’s too hard. And it’s not about admitting defeat, it’s about accepting that your life just won’t ever be that. And if the next IVF fails I will have all of Matilda’s things to sort out and give away or sell, those things we saved for ‘the next baby’ because there will be no next baby. And it will destroy me all over again.

I’ve decided to use this blog space to post a poem a day with a picture and a little bit about my experience as part of the Baby loss awareness month. There are thousands of women and couples who have lost babies at different stages, I would like for them to have a small platform in the month where all us spectres of baby death grief can come out and have reason to speak. We seem to have a lot of days and weeks and months that are about raising awareness, but I think this one is particularly important in that it isn’t just about raising awareness, it gives parents who have lost babies a chance to talk about their children, to talk about their experiences and a reason to do that.

Generally it makes people uncomfortable to see pictures of dead babies, or to hear stories of still births. But what people don’t realise is that stillborn babies are still babies, still bundled up in pride and love from the parents. I can’t count the number of times I have seen pictures of people’s children on Facebook and wanted to share my own. Or wanted to add to a conversation about pregnancy something lighthearted about morning sickness, knowing that I can’t because everyone knows that I didn’t take my baby home, so all the talk about swollen ankles and puking out of car windows is somehow darkened and tainted, there is death on it. And people don’t like death. but My daughter was beautiful, my pregnancy was real and my baby might be dead, but I feel the same towards her as any other mum does. It’s just all different too. For months after she was buried I fretted that she would be cold in the cemetery. I fretted that the morticians wouldn’t hold her properly. Worse, I worried that they would be talking about what they’d done at the weekend while they cut her, as if she wasn’t there. I could cry now, that feeling of needing to protect her never went away. It still hasn’t.

Here is a link to a charity called Count the Kicks, it’s an organisation that aims to empower women when they are at their most vulnerable, when pregnant. They give brilliant advice on recognising reduced foetal movements. If I’d been listed to about Matilda’s reduced movements, there is a very good chance she would be here now, so as you can imagine, it’s very close to my heart.
This is my way of marking baby loss awareness week. I’m going to post a link every day to a different charity or organisation too, so that they might benefit. The poems won’t all be mine, I am busy getting permission to post some poems that are beautiful in their truth, but since it’s the 3rd of October already, I shall start with one of my own from my current pamphlet, Lapstrake, published by Flarestack Poets. This poems are from a series of poems about the grieving process.

And her Great Gift of Sleep

II

Shipwrecked on the bed, I feel for her;

anything, a sign, anything. i’ve missed

her tidal shifts, the turn, the underwater

tap-tap, of deep sea exploration. Far away,

the bubbles; the dulled sound of inside

sounds is receding. She is drowning.

My little sprat, my gill-less fish, slippery-slim

and flexible, my squid, my jewel

in her mermaid’s purse with her tiny feet,

that are a perfect miniature

of my own, has stopped nudging me,

has stopped.

Hauling up, dead weight; stretched belly

like ballast, I steady myself

at the window, listen

for the sea, breathe

through the crack,

wet-sand-heavy

and exhausted,

this moment is washing

right through me. This moment

and the moments to come

will be relentless,

a tide drawn over and over

by our lunar child, her death gravity so great

that it will drag me

back and forth for years.

I dream the sea

goes out

and the tide line

is scattered with her clothes.

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6 thoughts on “Baby Loss Awareness Month

  1. Wendy..your posts add another layer of understanding about my mum..which is important for me because she is old now and she is a woman who hides her feelings always…she never really talked about her still born baby boy,..my big brother..but once explained the fear of nearly losing me, a breech birth…she thought she had..she has been angry/ scared of me in some strange way ever since…i think everyone’s story is different, all hard,all different, all filled with a bit of blame and if onlys…you are a real mum and it is so sad that you didn’t get the chance to benefit for much much longer..

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  2. rachel

    Thank you so much for this article – I found your page thanks to facebook and the Miscarriage Association having posted a link to this blog. I am so glad I did. I am so so sorry for your losses and my heart goes out to you. I have had two missed miscarriages, both detected in second trimester at different stages, and I feel exactly like you describe in this article – sometimes i want to talk about it to everyone to make them understand how horrendous it is and other times the futility of trying to get people to understand how i’m feeling makes me just want to hide away i feel so lonely in that grief. My second miscarriage was very recent so although I am keen to share my story as part of this baby loss awareness month and feel it is very important, I think I will have to wait until some point in the future, when I am less raw and vulnerable. Reading your posts has really helped me though and gives me courage to share in future.
    The fear of trying again is so strong. I wish you all the very best with your attempt next year, if there’s any justice you will be successful. It’s just a heartbreaking and incredibly anxious road.
    The picture of you and Matilda is lovely – she is absolutely beautiful xxx

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